Author of Living with Half a Heart
Living with Half a Heart
Libby’s book is a practical guide for parents and caregivers contemplating Fontan Surgery for their newborn baby. This book offers insights for parents who are in the process of making the decision to progress or not with a pregnancy of an unborn babe diagnosed with CHD. The pages reveal Libby's version of “a mother’s guide,” to achieving a Fontan circulation.
Libby's writes from a practical viewpoint and shares her experience, strength, and hope throughout the book. It is clear that Libby's purpose is to share information that she hopes will be useful for others in need of support and practical advice.
The book is based on Libby's experience and willingness to navigate the unknown journey of motherhood of a child needing Fontan Surgery. Libby is a mother to four sons. Daniel, her youngest, is the reason Libby felt compelled to share her experience. Daniel’s cardiac malformation was detected at a 20-week ultrasound giving her time to prepare for the challenging journey ahead.
This journey includes three life-saving heart surgeries and walks the reader through a pathway from diagnosis to birth. She discusses planned surgeries, and the at times precarious road, to a heart-healthy and heart mended (not cured) little boy.
Hope lies within her publication. Libby's thoughtful inclusion of a glossary of terms in her own words offers a much needed explanation of the medical jargon. She also includes a number of reflections, resources, and retreat ideas that can provide spiritual support along the way.
Libby hopes her book can assist other families preparing for Fontan surgery. It may be useful to all families who receive a diagnosis of a congenital heart defect for their child which requires time spent in the intensive care unit, hospital ward and beyond. Libby hopes that her handbook can assist others best prepare for hospital stays and surgeries and provide hope for the future.